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	<title>The Virginia Biker Network &#187; herdon</title>
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		<title>NetWitness Announces Second Annual Charity Ride for Kids to Support Opsoclonus Myoclonus Syndrome (OMS)</title>
		<link>http://www.vabiker.net/2008/06/netwitness-announces-second-annual-charity-ride-for-kids-to-support-opsoclonus-myoclonus-syndrome-oms/</link>
		<comments>http://www.vabiker.net/2008/06/netwitness-announces-second-annual-charity-ride-for-kids-to-support-opsoclonus-myoclonus-syndrome-oms/#comments</comments>
		<pubDate>Tue, 17 Jun 2008 19:30:44 +0000</pubDate>
		<dc:creator>Hersey</dc:creator>
				<category><![CDATA[Biker Events]]></category>
		<category><![CDATA[charity]]></category>
		<category><![CDATA[event]]></category>
		<category><![CDATA[herdon]]></category>
		<category><![CDATA[oms]]></category>
		<category><![CDATA[ride]]></category>

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		<description><![CDATA[Motorcycle Ride to Help Increase Awareness for Rare Neurological Disorder &#8212; All Donations Benefit The Pediatric OMS Research Fund &#8211; June 28, 2008 HERNDON, Va.&#8211;NetWitness Corporation, the leading provider of next generation network security monitoring and active threat intelligence software, today announced its second annual “Ride for Kids” event to take place on June 28, [...]]]></description>
			<content:encoded><![CDATA[<p>Motorcycle Ride to Help Increase Awareness for Rare Neurological Disorder &#8212; All Donations Benefit The Pediatric OMS Research Fund &#8211; June 28, 2008</p>
<p>HERNDON, Va.&#8211;NetWitness Corporation, the leading provider of next generation network        security monitoring and active threat intelligence software, today        announced its second annual <span id="bwanpa2">“</span>Ride for Kids<span id="bwanpa3">”</span> event to take place on June 28, 2008 to benefit children diagnosed with        Opsoclonus Myoclonus Syndrome (OMS), a rare autoimmune disorder caused        by a neuroblastoma, a cancerous tumor, or a virus. The annual motorcycle        ride kicks off at Bob Evans Restaurant in Chantilly, Virginia where        participants will ride through historic Northern Virginia and end at        Algonkian Regional Park in Sterling, Virginia for a barbeque. Non-riders        are also strongly encouraged to attend the family barbeque, which begins        at noon, and will include music, prizes and games.</p>
<p><span id="more-120"></span> Currently there is no cure for OMS and the price of ongoing treatments        are extremely expensive; costing $25,000 a month for only one vial of        Adrenocorticotropic Hormone (ACTH), given as a shot every other day.        This drug is only one of many medicines that diagnosed children require        on a regular basis. All proceeds raised in the NetWitness Ride for Kids        will assist in the promotion of public and professional awareness of OMS        and the research towards improved treatments and a cure.</p>
<p>This year<span id="bwanpa4">’</span>s charity was selected in support of        NetWitness sales executive Jaci Vilardo<span id="bwanpa5">’</span>s six        year-old daughter, who was diagnosed with OMS four years ago. <span id="bwanpa6">“</span>OMS        is an extremely rare disease and this event provides an excellent means        of educating the public and contributing to the efforts of finding a        cure,<span id="bwanpa7">”</span> said Jaci Vilardo. <span id="bwanpa8">“</span>The        Pediatric OMS Research Fund has been an enormous support system for us        in caring for our daughter Isabella and we are very grateful to        NetWitness for organizing an event to support this important group.<span id="bwanpa9">”</span></p>
<p>OMS is so rare that it has been listed as an orphan disease on the        National Organization of Rare Diseases with virtually no funding to        support research. Though the disease is not fatal, children with OMS can        suffer from permanent brain damage. Other causes of OMS can be        behavioral problems, learning disability, body tremors, and speech        deficiency. To learn more about OMS, visit The Pediatric OMS Research        Fund at <a href="http://www.omsresearch.org/aboutoms.html" target="_blank">www.omsresearch.org/aboutoms.html</a>.</p>
<p>Last year, NetWitness<span id="bwanpa10">’</span> annual Ride for Kids        event supported the National Fragile-X Foundation. Fragile X is a family        of genetic conditions, which can affect individuals and families in        various ways. The event raised over $24,000 dollars.</p>
<p>Below is additional information regarding the time, location and price        of the Ride For Kids event:</p>
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<td id="t5711462_1_0_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">
<p class="bwcellparagraphmargin"><span class="bwunderlinestyle"><strong>Time/Location:</strong></span></p>
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<td id="t5711462_1_0_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_0_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">7:30AM: On-site registration</td>
</tr>
<tr>
<td id="t5711462_1_1_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_1_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_1_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">8:00AM Ride Start: Bob Evans Restaurant</td>
</tr>
<tr>
<td id="t5711462_1_2_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_2_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_2_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">11:30AM Ride Finish: Algonkian Regional Park</td>
</tr>
<tr>
<td id="t5711462_1_3_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_3_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_3_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">12:00PM Barbeque: Algonkian Regional Park</td>
</tr>
<tr>
<td></td>
<td></td>
<td></td>
</tr>
<tr>
<td id="t5711462_1_5_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">
<p class="bwcellparagraphmargin"><span class="bwunderlinestyle"><strong>Price:</strong></span></p>
</td>
<td id="t5711462_1_5_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_5_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">
<p class="bwcellparagraphmargin">Non-riders: $10 adult / $5 kids 12 &amp; under</p>
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</tr>
<tr>
<td id="t5711462_1_6_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_6_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_6_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">$25 per motorcycle (ride only)/ $50 per motorcycle (ride, tee-shirt,            1 food ticket)</td>
</tr>
<tr>
<td id="t5711462_1_7_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_7_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_7_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">(Registrations received after June 20th, 2008 may not receive a            tee-shirt)</td>
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<td></td>
<td></td>
<td></td>
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<td id="t5711462_1_9_19600" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">
<p class="bwcellparagraphmargin"><span class="bwunderlinestyle"><strong>Register:</strong></span></p>
</td>
<td id="t5711462_1_9_28000" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft"></td>
<td id="t5711462_1_9_156800" class="bwcellpaddingleft0 bwverticalaligntop bwtextalignleft">
<p class="bwcellparagraphmargin"><a href="http://www.netwitness.com/rideforkids" target="_blank">www.netwitness.com/rideforkids</a></p>
</td>
</tr>
</tbody>
</table>

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